Big day coming for Jace

It's been awhile since we posted. Things have been crazy busy!! Just wanted to update you on Jace and ask for lots of prayers. Jace has had lots of procedures since the first of the year. And he has been such a trooper through it all. He had dental work at the hospital in March and ended up getting his front two teeth pulled after he fell out of the bus on a field trip at daycare and messed them up. The next week he underwent a heart cath and had ballooning of stents he had had put in and blocking off of extra blood vessels all in preparation for his open heart surgery. Then mid April he had an angiogram of his head to further evaluate his previous stroke. We were told he has Moya Moya syndrome which is a vascular condition that affects the blood vessels to his head. And this week he got glasses because we found out he couldn't see very well!!
Amidst all that, we have moved to a new house, Makenna played volleyball, Madison basketball and Jaxson had pneumonia twice.
On a positive note the kids have done great in school this year and the girls have perfect attendance. We got to eat lunch with a special family and friend from New Day, Lucy Kate.
And our good friend Emily leaves next week to get her son Jabin from China who is also a New Day friend!! And next Sunday the 20th Jace will graduate from preschool with plans to start kindergarten this fall. Jace loves life and following me around!!
We are asking for lots of prayer on Friday May 25th. Jace will have his big open heart surgery procedure. The surgeon told me has has done over 200 and he would consider Jace's high risk! The procedure is going to take longer than usual because Jace has some blood vessels they don't usually encounter that they have to move. He is also higher risk for a stroke with the vascular syndrome he has and higher risk for infection because he has no spleen.
We know things are never straight forward with Jace! It's obvious God has had his hand on him with all he's been through. Our surgeon is amazing and I know he will do his best. The rest is in God's hands. This is Jace's shot to be better and not turn blue and be short of breath after walking across the room. We ask our family and friends to join us in prayer on the 25th to be with Jace and the doctors!! It will be a long day for all. We have been told to plan on being in the hospital at least 2 weeks. I will try my best to update this regularly.
Thanks to everyone who joins us in prayer!! God is good and in control.
Enjoy the pics of Jace!!